Your Data Matters National Programme Fact Sheet
Information about your health and care helps to improve your individual care, speed up diagnosis, plan your local services and research new treatments.
In May 2018, the strict rules about how this data can and cannot be used were strengthened. The NHS is committed to keeping patients information safe and always being clear about how it is used.
GP Practices are no longer able to record a patients wish to opt out of the ‘Your Data Matters to the NHS’ programme. However, you can still choose whether your confidential patient information is used for research and planning. To find out more about this programme and to set a national data opt-out using the online service visit: www.nhs.uk/your-nhs-data-matters. You can also manage a choice on behalf of another individual by proxy. For example, if you are a parent or guardian of a child under the age of 13.
If you are unable to use the online service or require assistance on making your decision, you can telephone the helpline on 0300 303 5678. The telephone service is available 9am to 5pm, Monday to Friday, excluding Bank Holidays.
It is important that you are aware that the national opt-out does not prevent data being uploaded to the Summary Care Record (SCR) as the national data opt-out only covers purposes beyond individual care and treatment. If a patient chooses to opt out of having a SCR, they must ask their GP Practice to specifically record this decision. A separate form and further details for your SCR record choices can be found by clicking on the Summary Care Record heading found on the right under 'Further Information'.
Care Information Choices Programme
This programme no longer exists and has been replaced by ‘Your Data Matters to the NHS’. Patients who previously requested a type 2 opt-out (preventing information being shared outside of the NHS Digital for purposes beyond their individuals care) were automatically converted to a national data opt-out on 25th May 2018. For patients with a type 1 opt out (preventing information being shared outside a GP Practice for the purposes other than direct care), the NHS will continue to respect this until 2020 when the Department of Health and Social Care will undertake a consultation on their removal.
The Practice is unable to help you make your opt-out choice
as this is now part of a nationally run programme by NHS Digital